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Clinical Research
FAQs for Autoinflammatory Diseases Study providers and researchers.
… Whom should I refer to the NIH study? We are interested in seeing patients with the conditions listed above, or … from around the world. We are especially interested in patients with multiple affected family members, giving a … Ivona Aksentijevich if you would like to further discuss research opportunities. … FAQ for Providers and Researchers … …
Policy Issues
The GINA is an important U.S. civil rights law that protects individuals from discrimination based on their genetic information.
… It was first introduced into the U.S. Congress in the 1990s at a time when genetic testing and genetics … that this first version of the bill does not include protections against employment discrimination based on … in 1996. These bills include H.R. 2690 , "The Genetic Privacy and Nondiscrimination Act of 1996"; S. 1600 , "The …
Event
NHGRI sponsored the Genomic Medicine XI: Research Directions in Genomic Medicine Implementation meeting in La Jolla, California, September 5-6, 2018.
… … On September 5-6, 2018, the National Human Genome Research Institute (NHGRI) sponsored its 11th Genomic Medicine meeting -  Genomic Medicine XI: Research Directions in Genomic Medicine Implementation  - at the Hilton La Jolla …
National Advisory Council for Human Genome Research
The Director's Report Related documents contain links to materials supplemental to Dr. Eric Green's Director's Report presentation to the National Advisory Council for Human Genome Research in February 2020.
… B. Hunter Career Award Jay and Jeanie Schottenstein Prize in Cardiovascular Sciences Oscar B. Hunter Career Award in … Disease Alliance (ICDA) ICDA Website ICDA White Paper 18 Genomic Medicine Working Group Publishes “Year in Review: … - Genomic Community Resources (U24) 34 6th iDASH Genomic Privacy Challenge 35 Ethical, Legal, and Social Implications …
Research Funding
Contacts by Research Area
… Looking for a contact in your research area? Select a category below to find a program … to that topic. About the Categories   … Contacts by Research Area: Search … Contacts by Research Area … Contacts …
The Genomics Landscape
In the June 2020 edition of The Genomics Landscape, NHGRI Director Eric Green details NHGRI's new Diversity in Genomics Workforce Initiative.
… difficult time, with the events of the last week in cities across the United States on top of the illness, … on increasing the diversity of the next generation of genomic researchers. The NHGRI Diversity Action Plan (DAP) … was originally associated with NHGRI’s large extramural research initiatives, including the Centers of Excellence in …
Research at NHGRI
The Division of Intramural Research conducts scientific studies in NHGRI's labs on and around the NIH campus in Bethesda, Md.
… division accomplishes its mission on the main NIH campus in Bethesda, Maryland as well as at other sites, including …  - a group that provides expert external oversight for all research and training ongoing in the NHGRI Division of … Research aims to be world leaders in translating genomic knowledge into tools and approaches that improve the …
About Genomics
NHGRI considers the ethical, legal and social aspect of genomics research in our work, including these key policy issues
… is committed to driving the responsible use of genomics in society in order to advance knowledge and ensure that genomics … consider the ethical, legal, and social aspect of genomics research in our work, including these key issues. … Related …
National Advisory Council for Human Genome Research
The Director's Report Related documents contain links to materials supplemental to Dr. Eric Green's Director's Report presentation to the National Advisory Council for Human Genome Research in September 2020.
… Sciences  5 New Director, National Institute of Nursing Research 6 New Director, National Eye Institute 7 New … Human Genome Editing Full Report 17 FNIH Lurie Prize in Biomedical Sciences 2020 Winner 18 20th Anniversary of … 19 Technology Development Program PAR-18-777 - Novel Genomic Technology Development (R01) PAR-18-778 - Novel …
National Advisory Council for Human Genome Research
The Director's Report Related documents contain links to materials supplemental to Dr. Eric Green's Director's Report presentation to the National Advisory Council for Human Genome Research in May 2019.
… Statement: Responsibility to Recontact 12 Genomics In the News The NASA Twins Study: A Multidimensional Analysis … Genomics (CMG) Website Matchmaker Exchange Lappalainen – Genomic Analysis in the Age of Human Genome Sequencin g Liu – … Sequencing Panels 21 Clinical Sequence Evidence-Generating Research (CSER) Program CSER Program Website CSER Consortium …