Search Results
About NHGRI
The National Human Genome Research Institute is proposing a reorganization of the Division of Policy, Communications and Education.
… The National Human Genome Research Institute is proposing a reorganization of the Division of Policy, Communications and Education . The proposed … of the National Advisory Council for Human Genome Research    February 19, 2020 - Via social media: …
Policies and Guidance
Frequently Asked Questions regarding the GDS Policy expectations for NHGRI-funded genomic research.
… Frequently Asked Questions regarding the GDS Policy expectations for NHGRI-funded genomic research. … Data Types NHGRI encourages sharing of all … to determine whether the GDS Policy applies to their research study. … NHGRI expects that all human data generated …
Policies and Guidance
Text, graphics, videos, illustrations and other information on NHGRI websites are in the public domain, unless indicated.
… and other information on National Human Genome Research Institute (NHGRI) websites are in the public domain, … acknowledgement, such as: "Courtesy: National Human Genome Research Institute" with a link back to genome.gov. … … will abide by the same provisions as the NHGRI Copyright Policy. Please read our full external link disclaimer for …
News Release
Today, we are updating the way we manage data related to the NIH Genomic Data Sharing Policy.
… way we manage data related to the NIH Genomic Data Sharing Policy to again allow unrestricted access to genomic summary … studies we support in order to advance health or further research purposes. These summary results are importantly … research and clinical care, with low risk to participants' privacy. However, because there could be a small risk of …
News Release
The Genetics and Public Policy and Genetics and Education Fellowships provide a pathway for scientists to pursue careers in science policy or education.
… Sheena Faherty, Ph.D. … Rapid advances in genomic research have led to a wealth of potential clinical … curriculums can be established. … A Pathway to Science Policy and Education Careers One way to ensure that genomic … people who can succeed at the interface between genomic research and science education and policy. The National Human …
Event
On May 23, 2023, NHGRI will host a webinar: ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… topics: Overview of the NIH Data Sharing Management Policy Application of the DMS Policy to ELSI Research Data sharing templates and resources Q&A from … Native Participant Data NIH Notice on Protecting Privacy while Sharing Nature’s Data Repository Guidance …
News Release
NIH issues a notice seeking public comment on a proposed update to the data management of genomic summary results under the NIH Genomic Data Sharing Policy.
… summary results under the NIH Genomic Data Sharing (GDS) Policy. The proposed update to the GDS policy's data … NIH's goals to promote scientific advances and protect research participants' privacy interests by allowing genomic summary results from …
Professional Development Programs
The Genetics and Public Policy Fellowship is designed for individuals interested in the development and implementation of genetics-related health and research policies at a national level.
… to be notified about key fellowship dates. … Advances in research and their successful translation to improve health are deeply influenced by important policy decisions at the national level. From guiding research agendas to informing the integration of genetics and …
Staff
Cristina Kapustij is the chief of the Policy and Program Analysis Branch at the National Human Genome Research Institute.
​
… Cristina Kapustij, M.S., is chief of the Policy and Program Analysis Branch at the National Human Genome Research Institute. Ms. Kapustij spearheads the branch’s … Data Sharing (GDS) Policy, Informed Consent, health privacy regulations, human research participant protection … …
News Release
Cari Young and Julie Nadel join NHGRI as public policy and education fellows.
… September, Ms. Young will join the National Human Genome Research Institute (NHGRI) as the 14th American Society of Human Genetics (ASHG)/NHGRI Genetics and Public Policy Fellow. She will spend her first four months with the … contributed to her understanding of the intersection of research and policy. As part of her graduate program, she …