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News Release
The National Institutes of Health (NIH) Genomic Data Sharing Policy includes expectations for how researchers should obtain, share and access genomic data from human and non-human sources. As a leader in genomics, including relevant policy development and implementation, the National Human Genome Research Institute (NHGRI) encourages data sharing practices that go beyond the NIH expectations.
… National Institutes of Health (NIH) Genomic Data Sharing Policy includes expectations for how researchers should … development and implementation, the National Human Genome Research Institute (NHGRI) encourages data sharing practices … early 2020, NHGRI will require explicit consent for future research use and broad data sharing of all genomic data …
Research at NHGRI
The NHGRI Division of Intramural Research aims to advance the frontiers of genetics and genomics.
… The goal of the National Human Genome Research Institute's (NHGRI) Division of Intramural Research is to advance the frontiers of genetics and … NHGRI Intramural Program is a broad and highly integrated research enterprise that aims to explore human and model …
Fact Sheet
Several regulations and policies stipulate the information that must be given to research participants prior to their enrolling in a study.
… The Big Picture:  Informed consent is crucial in research as it ensures individuals have an informed choice … or data are de-identified); however, there may be other policy or ethical reasons for conveying that such research … did not provide consent before death. However, under the Privacy Rule a legally defined personal representative must …
Research Training
An opportunity for students to receive individualized research mentoring, learn about careers in genomics and have access to a network of early-career genome scientists.
… M.D., Ph.D., NHGRI Director … The National Human Genome Research Institute (NHGRI) Division of Intramural Research is one of the premier research programs in genome sciences. NHGRI scientists have …
Research at NHGRI
NHGRI researchers are creating foundational tools and methods to expand genomics research, ultimately leading to medical breakthroughs.
… diseases affect millions of Americans every day, and research is key to improving our ability to diagnose and treat these diseases. At the National Human Genome Research Institute, our researchers are creating foundational tools and methods to expand genomics research, ultimately leading to medical breakthroughs. … …
Research Funding
Frequently asked questions for Investigator-Initiated Research on Genetic Counseling Processes and Practices FOAs (RFA-HG-20-048 and RFA-HG-20-049).
… experience need(s) to be an integral part of the research team including being involved in research design, implementation, and analyses, not just … having a diversity of investigators involved in the research program.  Should I communicate with the program …
Research Funding
The three research domains to be considered for support by the NHGRI Ethical, Legal and Social Implications Research Program.
… the Rights of Individuals and Groups Law, Regulation and Policy Governing Genomics Industry, Commerce and Economics … Program Contact: Nicole Lockhart … Genomic Research Design and Implementation Diversity and Inclusion in … genetic and genomic data use and issues surrounding data privacy, data protection, data breaches and actual or …
Research at NHGRI
A list of scientific and clinical research investigators at NHGRI.
… Cores … Adjunct Investigators … Scientist Emeriti … Research Investigators … A list of scientific and clinical research investigators at the National Human Genome Research Institute. … A list of scientific and clinical …
For Patients and Families
​Clinical research is research conducted with human subjects, or material of human origin, in which the researcher directly interacts with human subjects.
… Clinical research is research conducted with human subjects, or material of human … Clinical researchers at the National Human Genome Research Institute (NHGRI) are developing advanced methods … of inherited and acquired genetic disorders. … Clinical research is research conducted with human subjects, or …
Research at NHGRI
NHGRI's research focuses on the understanding of human biology and developing new methods for treating disease.
… The National Human Genome Research Institute (NHGRI) conducts a broad program of laboratory and clinical research to translate genomics into a greater understanding … of heritable and genetic disorders. … Related Content … Research Areas … The National Human Genome Research …