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ELSI Strategic Planning Webinar: Genomic Decision-Making: Power and Identity

Event Details

At the time of this webinar, the National Human Genome Research Institute (NHGRI) was undergoing a Strategic Planning process with the goal of publishing the final Strategic Plan in the fall of 2020.  Over the previous year, the NHGRI held numerous related engagement events including town halls, meetings and workshops. NHGRI staff formed internal working groups tasked with identifying and describing ambitious challenges to address in the next decade of genomics. These draft challenges, which were informed by the feedback received, were meant to serve as potential building blocks for the final Strategic Plan.

The internal working group that focused on ELSI, engagement and education issues in the Strategic Plan hosted two distinct webinars to gather feedback on four potential challenges for the field of ELSI research over the next decade. The second webinar on July 9th, 2019 focused on two challenges related to decision-making about genomic data and how genomics influences our understanding of identity.

The agenda and summary for the July 2019 ELSI Strategic Planning Webinar may be downloaded at the link below.


Brief Agenda

All times Eastern.

  • 3:00 - 3:20 p.m. - Overview of the Strategic Planning Process and Feedback (20 minutes)
    Dave Kaufman
  • 3:20 - 4:00 p.m. - Breakout Discussion 1: Empower people to make well-informed decisions about genomic data access, use, sharing and protection (40 minutes)


    Group A: Carla Easter
    Group B: Nicole Lockhart
  • 4:00 - 4:40 p.m. - Breakout Discussion 2: Track and shape genomics’ influences on concepts of health and wellness, identity, family and community (40 minutes)


    Group A: Joy Boyer
    Group B: Dave Kaufman
  • 4:40 - 5:00 p.m. - Summary Discussion (20 minutes)
    All Participants

Last updated: November 19, 2019