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Fact Sheet
Several regulations and policies stipulate the information that must be given to research participants prior to their enrolling in a study.
… or data are de-identified); however, there may be other policy or ethical reasons for conveying that such research … In accordance with the NIH Genomic Data Sharing (GDS) policy , researchers who intend to use human-derived …
MINC
Use the resources to help you design an education program or policy for your setting.
… the resources to help you design an education program or policy for your setting. Resource Title Type Cost Action … Module Pdf Free Fox Chase PA: Risk Assessment Program Policy Free Genetics Home Reference Online Free Genetics of … the resources to help you design an education program or policy for your setting. …
Health
Genomic medicine involves using genomic information as part of clinical care and the health outcomes and policy implications of that clinical use.
… therapeutic decision-making) and the health outcomes and policy implications of that clinical use. Already, genomic … on engagement of the public, healthcare providers and policy makers in genomics topics: Education and Community Involvement Branch (ECIB) and Policy and Program Analysis Branch (PPAB) . Resources and …
For Patients and Families
Pharmacogenomics combines the science of how drugs work, called pharmacology, with the science of the human genome, called genomics.
… for that particular person. This new field combines the science of how drugs work, called pharmacology, with the science of the human genome, called genomics. … for that particular person. This new field combines the science of how drugs work, called pharmacology, with the …
News Release
Funding to advance understanding of RNA biology and development of RNA-based technologies
… of Health (NIH) has partnered with the U.S. National Science Foundation (NSF) to provide approximately $15.4 … in the last several decades have transformed the field of science and medicine,” said Ian Nova, Ph.D., program director … NIH and National Science Foundation to award $15.4M for RNA research …
Administrative
The Management Analysis and Workforce Development Branch provides advisory services, develops policies and procedures, and coordinates implementation at NHGRI.
Staff
Chris Wellington is a program director for Computational Genomics and Data Science in the NHGRI Office of Genomic Data Science.
… is a program director for Computational Genomics and Data Science in the NHGRI Office of Genomic Data Science. His primary focus is in the Genome Informatics and … is a program director for Computational Genomics and Data Science in the NHGRI Office of Genomic Data Science. …
Data Sharing
The NHGRI Data Sharing Governance Committee is responsible for the activities necessary for the Institute to implement and maintain NIH and NHGRI data sharing policies.
… to NHGRI data sharing policies. Providing consultation for policy or practice development. … Thomas, Ph.D. (DAC Chair*) Co-Chair Office of Genomic Data Science Elena Valdez, M.A. Executive Secretary Office of Genomic Data Science Benjamin Solomon, M.D. Division of Intramural …
FAQ
Frequently asked questions from the May 23, 2023 informational webinar, ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… the large number of resources available regarding the DMS Policy, where should I start? NIH resources regarding the DMS Policy are available on the NIH Scientific Data Sharing site. … with the e-Learning Webinars, Slide Sets and Overviews on policy requirements, the NIH-wide list of FAQs, and the …
News Release
As director, Erin Ramos will lead the institute’s extramural programs in basic genomics research.
… Division of Genome Sciences (DGSci). DGSci funds basic science-oriented genomics research as part of NHGRI’s … “Erin’s multidisciplinary and collaborative approach to science, along with her outstanding accomplishments in … the wonderful people who are producing excellent science. As director, Dr. Ramos will oversee the myriad …