Search Results
News Release
NIH issues a final Genomic Data Sharing policy to speed the translation of data into knowledge, improve health and protect patient privacy.
… Institutes of Health has issued a final NIH Genomic Data Sharing (GDS) policy to promote data sharing as a way to speed the … human and non-human projects that generate genomic data. This includes research conducted with the support of … September 2013. The GDS policy can be traced to the Human Genome Project, completed in 2003, which required rapid and …
Policies and Guidance
Broad data sharing promotes maximum public benefit from federally funded genomics research. NHGRI supports the broadest appropriate genomic data sharing with timely data release through widely accessible data repositories. These repositories may be open access (unrestricted) or, if more appropriate, controlled access.
… Broad data sharing promotes maximum public benefit from federally funded … research. NHGRI supports the broadest appropriate genomic data sharing with timely data release through widely accessible … to single nucleotide polymorphism (SNP) array data, genome sequence data, transcriptomic data, epigenomic data, …
Data Sharing
The NHGRI Data Sharing Governance Committee is responsible for the activities necessary for the Institute to implement and maintain NIH and NHGRI data sharing policies.
… The NHGRI Data Sharing Governance Committee is responsible for the … for the Institute to implement and maintain NIH and NHGRI data sharing policies. These activities include:  Promoting … to NHGRI data sharing policies. Providing consultation for policy or practice development. …
Policies and Guidance
A webpage with information and associated FAQs that describe various expectations for data sharing that are specific to NHGRI-supported studies.
… human genomic studies, including those submitting data to AnVIL and studies with an Alternative Data Sharing Plan.  Follow the standard process outlined in How … NIH’s expectation for submission and release of scientific data, with the following exception: for genomic data, NHGRI …
About NHGRI
A list of policies and guidance related to funding, genomic data sharing, website operations and our work environment at the National Human Genome Research Institute.
… A list of policies and guidance related to funding, genomic data sharing, website operations and our work environment at the National Human Genome Research Institute (NHGRI). … operations and our work environment at the National Human Genome Research Institute. ​ …
News Release
NIH issues a notice seeking public comment on a proposed update to the data management of genomic summary results under the NIH Genomic Data Sharing Policy.
… seeking public comment on a proposed update to the data management of genomic summary results under the NIH Genomic Data Sharing (GDS) Policy. The proposed update to the GDS policy's data … NIH is seeking public feedback regarding the proposed data management update and encourages comments from all …
Events
Data sharing has been a central tenet of the field of genomics since the Human Genome Project.
… Data sharing has been a central tenet of the field of genomics since the Human Genome Project. While many recognize that sharing genomic data is critical to scientific progress, considerable privacy … Genomic Data Sharing Policies: Global Challenges and Innovative …
News Release
Today, we are updating the way we manage data related to the NIH Genomic Data Sharing Policy.
… Today, we are updating the way we manage data related to the NIH Genomic Data Sharing Policy to again allow unrestricted access to genomic summary … (if the researcher had access to the individual's genomic data). In response, we decided that while we assess the state …
The Genomics Landscape
In 2022, The Genomics Landscape spotlighted genomic data sharing each month in a series of entries. This page contains a collection of each of those entries.
… Landscape Originally published: January 13, 2022  Data sharing is central to the field of genomics. Both human and … Phenotypes (dbGaP), model organism databases (e.g., Mouse Genome Informatics and Xenbase ), and cloud repositories … genomic variation and gene expression. Because GTEx data can be shared for general research use, they are being …
News Release
The National Institutes of Health (NIH) Genomic Data Sharing Policy includes expectations for how researchers should obtain, share and access genomic data from human and non-human sources. As a leader in genomics, including relevant policy development and implementation, the National Human Genome Research Institute (NHGRI) encourages data sharing practices that go beyond the NIH expectations.
… The National Institutes of Health (NIH) Genomic Data Sharing Policy includes expectations for how researchers … policy development and implementation, the National Human Genome Research Institute (NHGRI) encourages data sharing … require explicit consent for future research use and broad data sharing of all genomic data derived from human sources, …