Search Results
Event
The 2021 - 2023 Class of ISCC-PEG Scholars provided virtual presentations of the genomics education projects in which they were involved during their two years of participation in the program. Their ISCC-PEG Mentors provided introductions.
… Education and Community Involvement Branch, NHGRI  Class of 2021 - 2023 ISCC-PEG Scholar Presentations 2:05 - … 2:20 - 2:30 p.m. Trans and Gender Diverse Experiences of Hereditary Cancer Care: Insights from Interviews Sarah … Katharine Press Callahan, AB, M.D. The Children's Hospital of Philadelphia and the University of Pennsylvania, …
The Genomics Landscape
In the November 2018 edition of The Genomics Landscape, NHGRI Director Eric Green highlights the 25th anniversary of NHGRI's Intramural Research Program.
… milestones over the last 20 years. Check out one of those milestones - of great pride for genomicists - about 20 seconds into the … Charles Rotimi, were elected  into the National Academy of Medicine. All the best, … NHGRI has released a notice …
Clinical Research
A Longitudinal Natural History Study of Children with Mitochondrial Disease (at the NIH Clinical Center).
… natural history study at the National Institutes of Health (NIH) that  aims to define the relationship between … mitochondrial disease. Mitochondrial diseases are a group of disorders caused by problems with the cell’s ability to … for records and samples collection.   We take privacy and confidentiality very seriously. Your (your child's) medical …
Policy Issues
Participating in genomics research is an opportunity to support exploration of the genome and help scientists understand, prevent, detect and treat disease.
… is an opportunity to support scientific exploration of the genome and to help NIH in its mission to understand, … may also gain some individual benefit, such as diagnosis of a disease or access to a treatment in development. … A … identifiable information are protected by Certficates of Confidentiality, or CoCs. A researcher whose study is covered …
Event
The 2020 - 2022 Class of ISCC-PEG Scholars provided virtual presentations of the genomics education projects in which they were involved during their two years of participation in the program. Their ISCC-PEG Mentors provided introductions.
… Education and Community Involvement Branch, NHGRI  Class of 2020 - 2022 ISCC-PEG Scholar Presentations 1:05 - … Snyder, M.S., GC National Institute on Aging Division of Extramural Activities 1:15 - 1:20 p.m.  Discussion 1:20 - … Clinical Pharmacogenomics Fellow University of Pittsburgh School of Pharmacy Kristine R. Crews, …
Policy Issues
Participar en una investigación genómica es una oportunidad para apoyar la exploración cientÃfica del genoma.
… los Institutos Nacionales de la Salud (National Institutes of Health, NIH) en su misión de entender, prevenir, detectar …
Healthcare Provider Genomics Education Resource
Genomics plays a role in every area of nursing, whether nurses are at the bedside providing one-on-one care, treating entire populations, teaching the next generation of nurses, or making discoveries in the lab.
…  Anne L. Ersig, Ph.D., RN Assistant Professor University of Wisconsin-Madison School of Nursing …  Trina K. Walker, DNP, APRN, FNP-C Assistant Professor Creighton University College of Nursing … The Inter-Society Coordinating Committee for …
News Release
NIH issues a final Genomic Data Sharing policy to speed the translation of data into knowledge, improve health and protect patient privacy.
… NIH Office of Communications … The National Institutes of Health has issued a final NIH Genomic Data Sharing (GDS) … to use data only for the approved research, protect data confidentiality (including not sharing the data with …
Event
The Inter-Society Coordinating Committee for Practitioner Education in Genomics (ISCC-PEG) held its ninth in-person meeting on February 25, 2020, in Bethesda, Maryland.
… Pathology (AMP) Christina Aquilante* American College of Clinical Pharmacy Rubin Baskir* NIH, OD Michelle Bishop* … Blain National Eye Institute Jeff Botkin Professor of Pediatrics and an Adjunct Professor of Human Genetics University of Utah Marie-Luise Brennan …