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Health
Genomic medicine involves using genomic information as part of clinical care and the health outcomes and policy implications of that clinical use.
… therapeutic decision-making) and the health outcomes and policy implications of that clinical use. Already, genomic … on engagement of the public, healthcare providers and policy makers in genomics topics: Education and Community Involvement Branch (ECIB) and Policy and Program Analysis Branch (PPAB) . Resources and …
FAQ
Frequently asked questions from the May 23, 2023 informational webinar, ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… the large number of resources available regarding the DMS Policy, where should I start? NIH resources regarding the DMS Policy are available on the NIH Scientific Data Sharing site. … of Confidentiality  would be insufficient explicit federal, state, local, or Tribal law, regulation, or policy …
Administrative
The Management Analysis and Workforce Development Branch provides advisory services, develops policies and procedures, and coordinates implementation at NHGRI.
Events
Data sharing has been a central tenet of the field of genomics since the Human Genome Project.
Data Sharing
The NHGRI Data Sharing Governance Committee is responsible for the activities necessary for the Institute to implement and maintain NIH and NHGRI data sharing policies.
… to NHGRI data sharing policies. Providing consultation for policy or practice development. … Appointed Members  Erin M. …
Organizational Structure
NHGRI’s Office of Genomic Data Science (OGDS) provides leadership, strategic guidance and coordination for NHGRI activities, programs and policies in genomic data science.
… career researchers September 7, 2023 NIH data management policy commits to making research results available February … Research and the New NIH Data Management and Sharing (DMS) Policy Webinar May 23, 2023 Webinar: Educational Hub for …
Staff
Dr. Dave Kaufman is a program director Division of Genomics and Society​ at the National Human Genome Research Institute.
… … Dave Kaufman, Ph.D. … Dave Kaufman, return of results policy, ethical legal and social implications, genomic … citizen science … Dave Kaufman, return of results policy, ethical legal and social implications, genomic …
News Release
The National Institutes of Health (NIH) Genomic Data Sharing Policy includes expectations for how researchers should obtain, share and access genomic data from human and non-human sources. As a leader in genomics, including relevant policy development and implementation, the National Human Genome Research Institute (NHGRI) encourages data sharing practices that go beyond the NIH expectations.
… National Institutes of Health (NIH) Genomic Data Sharing Policy includes expectations for how researchers should … sources. As a leader in genomics, including relevant policy development and implementation, the National Human … from human sources, such as specimens and cell lines. The policy applies to NHGRI-funded research that will generate …
Careers and Training
View job openings at the National Human Genome Research Institute and find the perfect position for you.
… Careers, Genomics Careers, Jobs At NIH, Careers At NIH, Federal Jobs … View job openings at the National Human Genome …
Profile
NHGRI science writer Prabarna Ganguly spoke with Segre about her research career, what makes microbes so complex and her roles in science policy and anti-harassment campaigns.
… and life science at the Office of Science and Technology Policy. How do you feel about being appointed, and what does … at the White House Office of Science and Technology Policy, where she is working on pandemic preparedness and … what makes microbes so complex and her roles in science policy and anti-harassment campaigns. This interview has been …