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Policies and Guidance
Broad data sharing promotes maximum public benefit from federally funded genomics research. NHGRI supports the broadest appropriate genomic data sharing with timely data release through widely accessible data repositories. These repositories may be open access (unrestricted) or, if more appropriate, controlled access.
… broad data sharing promotes maximum public benefit from federally funded … genomics research. nhgri supports the broadest appropriate genomic data sharing with timely data release through widely …
Event
On May 19-20, 2016, the National Human Genome Research Institute (NHGRI) hosted a two-day workshop where participants were asked to weigh the benefits and risks of sharing aggregate genomic data with secondary users.
… update workshop on establishing a central resource of data from genome sequencing projects report resolving … participants were asked to weigh the benefits and risks of sharing aggregate genomic data with secondary users. … nisc, 5th floor …
News Release
NIH issues a final Genomic Data Sharing policy to speed the translation of data into knowledge, improve health and protect patient privacy.
… … the national institutes of health has issued a final nih genomic data sharing (gds) policy to promote data sharing as a way to …
Policy Issues
Data standards for NHGRI GDS policy cover: guiding principles and expectations for data sharing; consent for and exceptions to broad data sharing; extent of data to be broadly shared; timeline for data sharing and guidance for data submission and data release.
… all data produced with nhgri support should be shared with the … partnerships, such as the  national cancer institute's genomic data commons . when nih data resources are not … investigators (pis) should indicate alternative data sharing approaches (e.g., consortia databases or pi-hosted …
Policies and Guidance
Information about data sharing plans, requests for exceptions to the Genomic Data Sharing Policy, and the process for submitting data.
… all final datasets (human or non-human, including microbial data ) generated through large-scale genomic projects, not just those datasets generated to … or made available through nhgri-approved alternative data sharing plans. nhgri finds value in and encourages the …
Policy Issues
Investigators can access human genomic data through a tiered model of unrestricted-access (i.e., open) and controlled-data access mechanisms.
… investigators can access human genomic data through a tiered model of unrestricted-access (i.e., … principles and procedures outlined in the nih genomic data sharing (gds) policy . access requests for specific research …
Policies and Guidance
Frequently Asked Questions regarding the NIH Genomic Data Sharing (GDS) Policy.
… nhgri genomic data sharing (gds) policy: faqs … frequently asked questions regarding the nih genomic data sharing (gds) policy. … frequently asked …
News Release
The National Institutes of Health (NIH) Genomic Data Sharing Policy includes expectations for how researchers should obtain, share and access genomic data from human and non-human sources. As a leader in genomics, including relevant policy development and implementation, the National Human Genome Research Institute (NHGRI) encourages data sharing practices that go beyond the NIH expectations.
… ganguly, ph.d. … the national institutes of health (nih) genomic data sharing policy includes expectations for how researchers …
Policy Issues
Per the NIH GDS Policy, NHGRI will consider requests for exceptions to standard data sharing plan expectations. When consistent with program priorities, NHGRI may accept well-justified data sharing plans that do not include broad data sharing or that include more narrow data use limitations for future research.
… , nhgri will consider requests for exceptions to standard data sharing plan expectations. when consistent with program … to this page as they are developed. … overview … nhgri genomic data sharing (gds) policy: exceptions and …
Policy Issues
Per the NIH GDS Policy, informed consent documents for prospective data collection after January 25, 2015 should state what data types will be shared (e.g., genomic, phenotype, health information, etc.), for what purposes (e.g., general research use, disease-specific research use, etc.), and whether sharing will occur through open (unrestricted) or controlled access databases (or an approved alternative sharing plan).
… nih gds policy, informed consent documents for prospective data collection after january 25, 2015 should state what data types will be shared (e.g., genomic , phenotype, health information, etc.), for what … use, disease-specific research use, etc.), and whether sharing will occur through open (unrestricted) or controlled …