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News Release
A 2018 workshop led by Alaska Native people provides a path towards collaborative, community-driven genomics research.
… a path towards collaborative, community-driven genomics research. … In August 2020 the Centers for Disease Control and Prevention identified that Indigenous … a workshop on genomic research with the National Human Genome Research Institute (NHGRI), part of the National …
News Release
NIH will hold a Reddit "Ask Me Anything" with members of its NHGRI Ethical, Legal and Social Implications Research Program.
… "Ask Me Anything" (AMA) with members of the National Human Genome Research Institute's (NHGRI) Ethical, Legal and Social … availability of genomic information elevate the need for research on the resultant ethical, legal and social …
News Release
NIH submits new policy that requires all NIH-funded investigators who conduct sensitive, health-related research be issued Certificates of Confidentiality.
… 13, 2016, was to strengthen privacy protections law for research participants. The new law specifically requires … the policy will become a term and condition of award for grant recipients collecting relevant types of data. …
News Release
Daniel Kastner, M.D., Ph.D., Scientific Director for the Intramural Research Program at the National Human Genome Research Institute (NHGRI) recognized for his pioneering work on the genomics of autoinflammatory diseases.
… Ph.D. … Daniel Kastner, M.D., Ph.D., Scientific Director for the Intramural Research Program at the National Human Genome Research Institute (NHGRI) recognized for his … in Molecular Medicine on June 4. The HHS Departmental Awards, which are the highest honors issued by the …
Research Funding
The three research domains to be considered for support by the NHGRI Ethical, Legal and Social Implications Research Program.
… of Genomic Healthcare Practices Costs and Coverage for Genomic Healthcare … Click on the research areas and … Statements and Contacts page. Before developing an ELSI grant proposal, applicants are strongly encouraged to contact … research influences the belief that an individual’s genome determines their future health and well-being. The …
News Release
The zebrafish is a powerhouse tool that helps researchers better understand the genes that are implicated in disease.
… wee creature is making big waves in the sea of genomics research. The zebrafish is a powerhouse tool that helps … are implicated in disease. And, here at the National Human Genome Research Institute (NHGRI), researchers are advancing … want knocked out," said Dr. Sood. "It's a service provided for NHGRI investigators." Usually the genes are selected …
The Informed Consent Resource
Explore genomics-relevant considerations for informed consent and guidance on how to approach them.
… This webpage discusses genomics-relevant considerations for informed consent and provides guidance on how to approach … about the risks and benefits of participating in a research project. … The informed consent process and consent … do not have [disorder]. You may learn something about your genome that relates to the health of your relatives. If so, …
News Release
New grants totaling approximately $29.5 million will enable scientists to generate and maintain the most comprehensive reference sequence of the human genome.
… the most comprehensive reference sequence of the human genome. The awards, made over five years pending the availability of … human genome is becoming obsolete. The funds are necessary for making advances in DNA sequencing technology and …
Research at NHGRI
The Social and Behavioral Research Branch conducts research to apply genomic discoveries to improve health and clinical care.
… The Social and Behavioral Research Branch (SBRB) aims to develop optimal approaches for the integration of genomic discoveries into clinical and … research methods to analyze these intersections. For example, we examine how common and rare genetic …
News Release
NIH expands its Encyclopedia of DNA Elements Project, which is creating a fundamental genomics resource scientists to study human health and disease.
… that are being used extensively in studies to interpret genome sequences and to understand the consequence of genomic … in the Division of Genome Sciences at NHGRI. "These awards provide the opportunity to strengthen this foundation … a network of researchers to develop and apply methods for mapping candidate functional elements in the genome, and …