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Research at NHGRI
CRGGH facilitates understanding of the relationship between genetic variation and population differences in disease distribution to inform health disparities.
FAQ
Frequently asked questions from the May 23, 2023 informational webinar, ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… subject selection methods Copies of blank, dated, stamped consent forms and IRB approvals Survey codebooks including … the following:   “Consent” refers to legally effective informed consent as required by the Common Rule (45 CFR 46, … research participant signature not required) and required informed consent prior to collecting qualitative data   …
Staff
Darryl Leja is a senior graphic designer, illustrator and visual information specialist within NHGRI's Office of Communications.
For Patients and Families
Genetic professionals provide information and support to individuals or families who have genetic disorders or may be at risk for inherited conditions.
Event
NSIGHT explores the implications, challenges and opportunities associated with the possible use of genomic sequence information during the newborn period.
Health
Genomic medicine involves using genomic information as part of clinical care and the health outcomes and policy implications of that clinical use.
Administrative
The Division of Management oversees a wide range of NHGRI activities, from financial management to administrative services to information technology.
Fact Sheet
Genomic data science is a field of study that enables researchers to use powerful computational and statistical methods to decode the functional information hidden in DNA sequences.
… with complex issues related to privacy and identity.   Informed Consent:  Researchers usually ask for consent from … genome-sequence data in the process of gaining such informed consent.   Privacy:  Powerful computational tools …
Talking Glossary
Chromosomes are threadlike structures made of protein and a single molecule of DNA that serve to carry the genomic information from cell to cell.
Talking Glossary
The central dogma of molecular biology is a theory that states that genetic information flows only in one direction, from DNA to RNA to protein.