This page has been archived and is provided for historical reference purposes only. The content and links are no longer maintained and may now be outdated.
Genomics and Health Disparities Archive
This page contains past initiatives and resources for minority and special populations. Many of these are no longer updated, but provided here for historical reference.
Minority Action Plan (MAP) Portal
An entry portal for students interested in research careers in genome science and the ethical, legal and social implications (ELSI) of genome research. It is also designed to facilitate meaningful exchange between program coordinators and Principal Investigators (PI).
Past Collaborative Research Activities
The National Human Genome Research Institute (NHGRI) recognizes the importance of including minorities in genetic disease research. NHGRI has several examples of ongoing research collaborations that focus on training minority scientists and on understanding the genetic basis of diseases that disproportionately affect minorities. Opportunities exist to establish new research collaborations to build on the successes of this effort.
In addition to the direct scientific benefits these collaborations will offer, they also will contribute to NHGRI's goal of increasing the number of underrepresented minorities participating in genomic and Ethical, Legal and Social Implications (ELSI) research.
Past NHGRI-Funded Research Studies and Collaborations Focused on Diseases and Conditions Affecting Minority Populations
Past Meetings and Archived Reports
- NIH Health Disparities Strategic Plan and Budget, FY2009-2013 (extended through FY2016)
This NIH-wide plan established the foundational principles for the NIH health disparities agenda. It outlines the ongoing and planned projects of each NIH Institute and Center, as well as the program offices within the NIH Office of the Director, to address minority health and health disparities. The plan encompasses not only research and clinical efforts, but also education, outreach and engagement, cultural competency, and workforce diversification. The plan has been extended through FY2016.
- NHGRI Five-Year Strategic Plan for Reducing Health Disparities (November, 2001)
This plan was developed as a blueprint for involving more minorities in genomics research, education, and outreach activities. It was submitted to
the National Center for Minority Health and Health Disparities (now NIMHD) to contribute to the NIH Health Disparities Strategic Plan and Budget, FY2002-2006.
- NHGRI/NIH Health Disparities Strategic Plan (FY2004-2008) (2004)
NHGRI's strategy for addressing health disparities was updated in 2004 and contributed to the NIH Health Disparities Strategic Plan and Budget, FY2004-2008.
- Executive Summary: Workshop on Characterizing Human Genetic Variation (August, 2004)
A workshop of scientists convened to discuss a number of issues associated with the idea of resequencing the human genome of many additional people for the purpose of further characterizing human genetic variation. Held in Washington, D.C. August 3-4, 2004
- Summary of Meeting to Discuss Increased Participation of Underrepresented Minority Groups in Doctoral Degree Programs in Genomics-Relevant Sciences
Professional and scientific society representatives met to discuss how their organizations could work together to inform the various communities about opportunities in genomics and Ethical, Legal and Social Implications (ELSI) and increase the number of underrepresented minorities pursuing doctoral degrees in scientific disciplines relevant to genomics. Held in Washington, D.C. in April 2002.
- NHGRI Action Plan to Increase the Number of Underrepresented Minorities Participating in Genomics and ELSI Research (April, 2001)
In May 2001, the National Advisory Council for Human Genome Research approved the Action Plan which outlined clear goals for the inclusion of underrepresented minority groups in research training, research collaborations, and education and outreach activities supported by all components of the Institute. The strategy was based on the information and suggestions gathered at the workshop on minority training held April 16-17, 2001.
- Summary of Grantees' Workshop on Strategies for Increasing the Number of Underrepresented Minorities Participating in Genomics and ELSI Research (November, 2001).
A meeting was held to explore new and innovative ideas and models for increasing the number of underrepresented minorities pursuing research careers in genomics and ELSI (ethical, legal and social implications) research.
- The Human Genome Project Conference: The Challenges and Impact of Human Genome Research for Minority Communities (November 2001)
NHGRI-sponsored conference to discuss the effect of genomic research on minority communities held in Washington, D.C., November 9-11, 2001.
Top of page
Last Updated: February 1, 2017