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GNE Myopathy Clinical Studies at NIH 

Contact Information

For Patients or Trial Enrollment 

Kennan Bradley, M.Sc.
Clinical Research Coordinator

For Providers and Clinical Trials

Nuria Carrillo, M.D.
(301) 402-2324

For Basic Research 

Marjan Huizing, Ph.D.
(240) 893-4742 

To Submit Medical Records

Fax: 301-402-0006

Related Links

Medical Genetics Branch
National Human Genome Research Institute (NHGRI)
National Institutes of Health Intramural Research Program
National Institutes of Health (NIH) 


NIH Clinical Center
10 Center Drive
Building 10, Room 10C103
Bethesda, MD 20895

Last Updated: October 18, 2017