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Event
NHGRI meeting focused on research that rapidly advances best practices for the implementation of genomic sequence data into clinical care.
… sponsored the meeting eMERGE & CSER: The Convergence of Genomics and Medicine at the Bethesda Hyatt in Bethesda, … practices for the implementation of genomic sequence data into clinical care, as well as research that combines biorepositories with …
For Patients and Families
The partnership engages communities on genomics, informs and shares perspectives, and impacts the focus of research.
… The Partnership for Community Outreach and Engagement in Genomics brings together community liaisons and health … University, Bozeman Gwen Darien, Executive Vice President, Patient Advocacy, National Patient Advocate Foundation Ella … Sound Alliance, Seattle Christine Wilson, M.S., Health Care Communications Consultant, Foxhall Communications …
15 Ways Genomics Influences Our World
Genomics is ending diagnostic odysseys for patients with rare diseases.
… Genomics is ending diagnostic odysseys for patients with rare … their challenges. In the last 10 years, a large number of patient groups have formed after the genomic cause has been … Network (UDN) American College of Medical Genetics and Genomics : Find Genetic Service Providers NLM MedGen - …
News Release
Healthcare professionals now have access to a range of educational and clinical genomics resources on the Genetics/Genomics Competency Center website
… now have access to a variety of educational and clinical genomics resources thanks to a new partnership between the … societies. The resources are available on the Genetics/Genomics Competency Center (G2C2) website, a free, online … of NHGRI's effort to address the growing need among health care professionals for knowledge in genomics, a science that …
Funded Research
The Advancing Genomic Medicine Research (AGMR) program stimulates innovation and advance understanding of when, where and how best to implement the use of genomic information and technologies in clinical care.
… Infants and Children: A Novel Paradigm in Public Health Genomics Eric A. Boerwinkle Samden Lhatoo GQ Zhang University … Brownstein Boston Children's Hospital Navigating Online Patient Experiences of Genomic Medicine: Identifying and … Supporting Team-Based, Longitudinal Genomic Diagnostic Care Katherine L. Nathanson Marylyn D. Ritchie Robert A. …
News Release
NIH issues a final Genomic Data Sharing policy to speed the translation of data into knowledge, improve health and protect patient privacy.
… data sharing as a way to speed the translation of data into knowledge, products and procedures that improve health … Department of Health and Human Services. NHGRI conducts genomics research in its own labs in Maryland, as well … of data into knowledge, improve health and protect patient privacy. ​ … Genomic data sharing policy, GDS, data …
News Release
Mothers may be able to reduce guilt over their children's inherited obesity guilt by being more careful in the future about their children's diet.
… ignored - two recent research studies suggest that doctor-patient talks about the genomic underpinnings of obesity can … be a downside, of course. Healthcare providers who discuss genomics and behavioral risk factors with overweight mothers … with overweight parents has an increased risk of growing into an obese adult. In 2013, the American Medical …
15 Ways Genomics Influences Our World
Genomics is helping us choose the right medication at the right dose for each patient.
… Genomics is helping us choose the right medication at the right dose for each patient. … Did you know that the sequence of your genome can … bodies must make a few chemical changes that convert them into an active form, just like we do when we eat food. Then, …
News Release
Fearful patients who received information about the role of genomics in obesity were less likely to take steps to improve health habits
… patients who received information about the role of genomics in being overweight viewed the information as … wanted to determine how to communicate information about genomics and weight so that patients are motivated to perform … tend to think that communication related to genomics and common disease is fairly unrelated to emotion," …
Fact Sheet
Understanding gene therapy for sickle cell disease
… about gene therapy. … Overview … Additional resources … Patient education materials … Understanding gene therapy for … for the sickle cell disease community … Gene therapy patient education materials … Understanding gene therapy for …