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Policy Advisor for Data Science and Sharing

Office of Genomic Data Science


B.A. Rutgers University, 2015

M.A., Duke University, 2018


Elena Ghanaim is the Policy Advisor for Data Science and Sharing at the National Human Genome Research Institute (NHGRI). She leads NHGRI’s scientific data sharing policy development, oversight, and implementation, and works with international, NIH and grantee partners on data sharing and privacy policy issues. Elena also advises the NHGRI Genomic Data Science Analysis, Visualization and Informatics Lab-space (AnVIL) on policy matters. In addition to these activities, Elena works closely with the NHGRI Policy and Program Analysis Branch (PPAB) on other NHGRI policies, guidance, and other communications materials on human subjects research regulations.

Ms. Ghanaim graduated from Rutgers University in 2015 with a bachelor’s in Genetics and minors in Philosophy and Psychology. From there, she worked as a post-baccalaureate IRTA fellow for two years at the National Institute for Child Health and Development (NICHD). She went on to receive her master’s in Bioethics and Science Policy with a focus on Genetics and Health Policy from Duke University in 2018.

Last updated: April 13, 2022