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Staff
Dr. Nicole Lockhart is a program director in NHGRI's Division of Genomics and Society.
… to the ethical, legal and social (ELSI) implications of genomic research. Dr. Lockhart also coordinates the Genomics … (NCI). While at NCI, she focused on ethical, legal and policy issues related to biobanking. Her academic training is … on ELSI Research Program grants and initiatives related to Genomic Research Design and Implementation, which identifies, …
The Genomics Landscape
In 2022, The Genomics Landscape spotlighted genomic data sharing each month in a series of entries. This page contains a collection of each of those entries.
… central to the field of genomics. Both human and non-human genomic data have been widely shared through public data … the power of scientific investigation by allowing genomic data to be combined across studies, and accelerates … data? The upcoming NIH Data Management and Sharing Policy (which will become effective on January 23, 2023) also …
Policy Issues
Scientific institutions are developing recommendations to support the responsible use of human gene-editing research.
… different groups including patients, community leaders and policy makers. NHGRI uses the term "genome editing" to … the responsible use of human gene-editing research. … Policy Issues …
15 Ways Genomics Influences Our World
Genomics is altering a genome with unparalleled efficiency and precision.
… introduce mutations at the wrong sites rather than the genomic location being targeted. Many scientists are working … to couple the malaria-battling mutations with additional genomic changes designed to ensure a rapid spread throughout … Pew Study 2016 Genetic Alliance UK 2017 Science  Magazine Policy Forum 2017 Geneticists vs. the Public Opinions …
The Genomics Landscape
In the April 2019 edition of The Genomics Landscape, NHGRI Director Eric Green previews the redesigned genome.gov website and its new features.
… inspirational piece illustrates yet another triumph of genomic medicine and offers hope for similar new treatments … role in strengthening research partnerships, informing policy, and educating society about genomic advances. A key element among these efforts is …
15 Ways Genomics Influences Our World
Genomics is transforming how we study, diagnose and treat cancer.
… therapy. Such trials are aided by patients who share their genomic data with researchers or even openly with other … cancer than other people. As we learn more about the genomic changes predisposing a person to cancer, we have been … a number of companies who can help if you'd like to have genomic testing for hereditary causes of breast cancer. … You …
15 Ways Genomics Influences Our World
Advances in genomics are helping you access information about your genome from your home.
… led to an explosion in at-home, or "direct to consumer" genomic testing. You can even seek genomic information without involving a healthcare provider … on the radio. The global "direct-to-consumer" (or DTC) genomic testing market was valued at $117 million in 2017, …
Fact Sheet
Several regulations and policies stipulate the information that must be given to research participants prior to their enrolling in a study.
… or data are de-identified); however, there may be other policy or ethical reasons for conveying that such research … samples for certain purposes. In accordance with the NIH Genomic Data Sharing (GDS) policy , researchers who intend to … collected or created after January 25, 2015, to derive genomic data may only do so when the original informed …
About Genomics
An interactive timeline listing key moments from the history of the project.
… (NIH) assembles scientists, administrators and science policy experts to plan for a possible Human Genome Project. … assembles scientists, administrators and science policy experts in Reston, Virginia, to lay out a plan for the … on Human Genome Sequencing. They decide that all human genomic sequence information should be made freely available …
Policy Issues
NHGRI wants to ensure that all populations benefit from the advances of genomics research.
… ethical, legal and social issues including utilization of genomic information, access to genomic services, and how genomics is perceived by different … as becoming research scientists, research participants and policy makers. It is important for everyone to be informed …