Issues in Genetics
Policy, legal and ethical issues in genetic research

HHS announces proposal to update rules governing research on study participant

National Archives and Records Administration 195 (Logo) Medical advances wouldn't be possible without individuals willing to volunteer to participate in research. Today's proposed changes to the Common Rule for protecting human research participants would update safeguards for participants and reduce unnecessary administrative burdens. For more information and details on providing comments on the proposed rule, go to:
HHS News Release
Read the Notice of Proposed Rulemaking []

Learn more about human subjects research

People with letters of A T C GThe use of human subjects in the field of genomics raises a number of key policy considerations that are being addressed at NHGRI and elsewhere. Learn more about his important topic with a new fact sheet from the Policy and Program Analysis Branch. Read more





NIH Genomic Data Sharing Policy Issued

Globe with genomic data circling around

NIH has issued a position statement on the use of public or private cloud systems for storing and analyzing controlled-access genomic data under the NIH Genomic Data Sharing (GDS) Policy. Read the Position Statement

NHGRI welcomes 2015 ASHG/NHGRI education and public policy fellows

Read moreThis fall, Cari Young, Sc.M., and Julie Nadel, Ph.D., will join the National Human Genome Research Institute as American Society of Human Genetics (ASHG)/National Human Genome Research Institute (NHGRI) education and public policy fellows. Ms. Young will spend time working with NHGRI's Policy and Program Analysis Branch, while Dr. Nadel will direct her talents to the Education and Community Involvement Branch. Both credit their high school biology classes with inspiring the direction of their careers. Read more

Last Updated: September 26, 2015