Patients and the right not to know
Secondary results occur when a genetic test shows a person unexpected results that could be important for their health. About half of individuals who said they don’t want to receive secondary genomic findings changed their mind after their healthcare provider gave them more detailed information.
FOR HEALTH PROFESSIONALS
About the National Human Genome Research Institute
At NHGRI, we are focused on advances in genomics research. Building on our leadership role in the initial sequencing of the human genome, we collaborate with the world's scientific and medical communities to enhance genomic technologies that accelerate breakthroughs and improve lives. By empowering and expanding the field of genomics, we can benefit all of humankind.