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NIH

Genomic Data Sharing (GDS) Policy 

Data Access

Resources for Investigators Requesting Access to dbGaP

PhenotypesInvestigators can access human genomic data through a tiered model of unrestricted- and controlled-data access mechanisms. Data stored in NIH-designated data repositories (e.g. NIH database of Genotypes and Phenotypes (dbGaP), Sequence Read Archive (SRA), or NIH Established Trusted Partnerships, such as the National Cancer Institute's Genomic Data Commons) are submitted and accessed under the principles and procedures outlined in the NIH Genomic Data Sharing (GDS) Policy.

Access requests for specific research purposes using controlled-access data are reviewed by NIH Data Access Committees (DACs). A listing of DACs and DAC Chairs can be found here. The NHGRI DAC Chair can be reached via email or by phone at the contact information found here. Investigators are asked to refer to the NIH extramural data access flowchart  for information on the process of requesting access. Requesters are expected to adhere to the Genomic Data Users Code of Conduct. The NIH Position Statement on Cloud Computing provides direction for those utilizing cloud computing services for storage and analysis of controlled-access data. 
 

Last Updated: April 6, 2018