Data Sharing Policies and Expectations
Explore This Page
This webpage and the associated FAQs describe the various expectations for data sharing that are specific to NHGRI-supported studies. For general NIH data sharing policy information, please visit NIH's Scientific Data Sharing website.
Timelines for Submitting and Releasing Data
NHGRI follows the NIH’s expectation for submission and release of scientific data, with the following exception: for genomic data, NHGRI expects non-human genomic data that are subject to the NIH GDS Policy to be submitted and released on the same timeline as human genomic data.


Key
- Level 0: Raw data generated directly from the instrument platform
- Level 1: Initial sequence reads, the most fundamental form of the data after the basic translation of raw input
- Level 2: Data after an initial round of analysis or computation to clean the data and assess basic quality measures
- Level 3: Analysis to identify genetic variants, gene expression patterns, or other features of the data set
- Level 4: Final analysis that relates the genomic data to phenotype or other biological states
Contacts
For Specific GDS Policy Compliance Questions:

Barbara Thomas, Ph.D.
- NHGRI Data Access Committee (DAC) Chair
- Scientific Review Branch

Jennifer Strasburger, M.S.
- Lead Genomic Program Administrator
- National Human Genome Research Institute
For Policy Questions:

Elena M. Ghanaim, M.A.
- Policy Advisor for Data Science and Sharing
- Office of Genomic Data Science
Last updated: January 9, 2023