Investigators can access human...
Investigators can access human genomic data through a tiered model of unrestricted-access (i.e., open) and controlled-data access mechanisms. Data stored in NIH-designated data repositories (e.g., NIH database of Genotypes and Phenotypes (dbGaP), the NHGRI Data Science Analysis, Visualization, and Informatics Lab-space (AnVIL), Sequence Read Archive (SRA), or NIH Established Trusted Partnerships, such as the National Cancer Institute's Genomic Data Commons) are submitted and accessed under the principles and procedures outlined in the NIH Genomic Data Sharing (GDS) Policy.
Access requests for specific research purposes using controlled-access data are reviewed by NIH Data Access Committees (DACs). See the listing of DACs and DAC Chairs.
The NHGRI DAC Chair can be reached via email or by phone at the contact information found on the main Genomic Data Sharing at NHGRI page.
Investigators are asked to refer to the NIH Extramural Data Access Flowchart for information on the process of requesting access. Requesters are expected to adhere to the Genomic Data Users Code of Conduct. The NIH Position Statement on Cloud Computing provides guidance for those utilizing cloud computing services for storage and analysis of controlled-access data.
Last updated: July 11, 2019